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And he used to be such a nice, quiet boy

Motor Neuron Disease: Sarah’s crusade continues.

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Pictures speak a thousand words don’t they?

While some sufferers of terminal diseases throw their hand in and wait for their life to end, Sarah Ezekiel has declared all-out war on her illness.

She has raised funds, co-ordinated a long running campaign on facebook and now made a film to raise awareness.  On top of that she has found time to squeeze in a spot of modelling and is due to visit Buckingham palace later this year.


Sarah was approached by Donna Cresswell of the MND association last year and asked if she would be interested in appearing in a short film to raise awareness of the disease.  Naturally she was on-board right from the start.

It wasn’t an easy film to make, the basement was cold and hard, which wasn’t good news for Sarah.  But the film wasn’t easy to make.  The advert is currently being shown at over 50 independent cinemas across England and Wales.

The 90-second film tells the story of a young woman who is suddenly ‘attacked’ by MND. An actress plays the part of Sarah and as her body deteriorates, illustrating the muscle-wasting effects of MND, the actress’s head is superimposed on the body of Sarah.

This is the first time the MND Association has produced a broadcast advert to raise awareness of this fatal, neurodegenerative disease which has relatively low recognition among the general public. Its hard-hitting style is likely to shock some audiences. The aim is to stimulate viewers’ curiosity to find out how they can help the charity fight back against MND.

About MND:
• MND is a rapidly progressive condition in the majority of cases.
• The cause of MND is unknown and there is no known cure.
• MND affects around 5,000 people in this country alone at any one time.
• In the UK five people a day die from MND.
• MND is the name given to a group of related diseases affecting the motor neurones (nerve cells) in the brain and spinal cord.
• As the motor neurones die, muscles weaken and waste. People lose movement in their arms and legs. The muscles that control breathing, speaking and swallowing can also be affected. The mind usually remains alert.



Written by Nick Gilmartin

February 4, 2009 at 3:37 pm

One Response

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  1. Reblogged this on Raising Awareness of Motor Neurone Disease and commented:
    I’ve blogged this video and story before but just another person view on how incredible MND sufferers are!

    Laura Yell - Motor Neurone Disease

    November 24, 2012 at 11:37 pm

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